Points of Contact

Medical 

Links

POC Jackie Clark 
P.O. Box 282, Waterford, VA 20197 

Office 703-265-3719, Cell 703-727-0404, Home 540-882-3380 

email: JackieClark@aol.com

Teresa Wall

PO Box 552
Stanleytown, VA  24168  USA

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Fax:
E-mail:

(276) 629-2369

(276) 647-3739

cockayne@kimbanet.com

Pat Cahill

founder of Share and Care & coordinator of
Share and Care Aftercare 

1294 "S" Street 
North Valley Stream, NY   11580  USA

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E-mail:

(516) 825-2284

Schemo@peoplepc.com

Spanish contact

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Fax:
E-mail:

Hans-Peter Seibold

German contact
Hohlstraße 20

56818 Klotten

G E R M A N Y

Home:

Work:
E-mail:

02671- 980 350

0261- 400 4141

HansPeterSeibold@T-Online.De

Fabiola Seibold 

Portuguese/Brasilian contact
7922 Falstaff Road
McLean, VA  22102  USA

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E-mail:

+ 49 2671- 980 350

seibold.fabiola@rz-online.de

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E-mail:

b24693@wanadoo.fr

Webside: http://cockayne.free.fr

Arfa Khan

United Kingdom contact

18 Eden Way
Brickhill, Bedford
England MK 41 7EP

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E-mail:

44-1234-406468

tmkhan@msn.com

Cathy Garrott

Japanese contact
2-850 Kubara
Omura, Nagasaki  856-0835  JAPAN

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FAX:

E-mail:

011-81-957-54-3734

011-81-957-53-5874

assistant coordinator 
Director of Medical Genetics  
University of Virginia Hospital 
Charlottesville, VA  22908  USA

E-mail:

tek8s@virginia.edu