Luke o'Brien FoundationHomepage (Cockayne-Syndrome.org)

 

The Luke O達rien Foundation was formed by Kevin and Jeanine O達rien in memory of their son Luke. The purpose of the Foundation is to assist those families dealing with a child who has Cockayne Syndrome as well as funding genetic research to find a cure. It also has a broader mandate of assisting families and funding research involving other genetic disorders.


Kevin and Jeanine had an opportunity to visit Dr. James Cleaver at his lab. The Luke O達rien Foundation has been able to provide financial support which we hope will bring us closer to a cure.


A heart-felt thanks goes to the O達rien痴 for all they have done in supporting research and for making the annual retreats a reality. Luke touched many lives in his short life and he continues to be a blessing to people around the world. 


Congratulations to Kevin, Jeanine and Mairead on the newest addition. Aislinn Grace was born on Nov. 2, 2000 and weighed 9 pounds, 6 ounces. Best wishes to the O達rien family!