anstehende Ereignisse

Nächstes Jahrestreffen 16 - 20. Okt. 2002 in Dallas Texas

Willkommen-Brief (von der Präsidentin von Share and Care, Shirley Rodriguez)

Dear PARENTS,

HowWDY FROM TEXAS! WE ARE LOOKING FORWARD TO SEEING Y'ALL October 16- 20, 2002 FOR OUR ANNUAL RETREAT. IN THIS PACKET, YOU FIND ALL THE INFORMATION YOU WILL NEED TO ATTEND THIS YEAR'S RETREAT. WE HAVE RESERVED 60 ROOMS FOR FAMIliES AND WILL NEED YOUR HELP TO MAKE IT THE BEST RETREAT EVER. YOU WILL NEED TO COMPLETE ALL THE INFORMATION ON THE FAMILY TRAVEL PACKET. WE MUST HAVE THIS INFORMATION SENT BACK TO US NO LATER THAN MAY 15.2002 IN ORDER TO ENSURE SUCCESSFUL PLANNING.

OUR NETWORK CONTINUES TO GROW AS NEW FAMIliES CONTACT US DAILY.

WE ARE NOT QUITE SURE IF THIS IS A GOOD THING OR NOT, BUT THESE NEW FAMIliES NOW KNOW THAT THEY ARE NOT ALONE WHEN IT COMES TO BATTliNG THIS VERY RARE DISEASE THAT HAS AFFliCTED OUR CHILDREN. MANY OF THE NEW FAMILIES HAVE EXPRESSED A GREAT INTEREST IN ATTENDING THIS YEAR'S RETREAT. IN ORDER FOR ALL THE FAMIliES TO HAVE AN OPPORTUNITY TO ATTEND, WE HAVE HAD TO MAKE SOME CHANGES FROM PREVIOUS YEARS.

IN ORDER TO HELP WITH THE FliGHT COSTS. WE WILL BE MAKING YOUR FliGHT RESERVATION FOR YOU THROUGH ONE TRAVEL AGENCY. TRANSPORTATION TO AND FROM THE AIRPORTS AND ALL OFF-SITE ACTIVITIES WILL BE INCLUDED. IT WILL NOT BE NECESSARY FOR ANYONE TO RENT A CAR. YOU MAY HOWEVER, DO SO AT YOUR OWN EXPENSE. ANYONE DRIVING TO THE RETREAT WILL BE REIMBURSED FOR GAS AND TOLLS.

ALL MEALS, HOTEL, AIRFARE, TRANSPORTATION AND ENTERTAINMENT WILL BE PAID FOR BY THE LUKE O'BRIEN FOUNDATION AND THE SHARE AND CARE NETWORK.

WE HAVE HAD GREAT SUCCESS WITH PAST RETREATS. HOWEVER WITH AN INCREASE IN THE NUMBER OF FAMILIES, THE COORDINATION AND PLANNING OF ALL OF THE DETAILS BECOMES MORE DIFFICULT. THEREFORE, YOUR TIMELY RESPONSE IS GREATLY ENCOURAGED AND APPRECIATED. SHOULD YOU HAVE ANY QUESTIONS OR CONCERNS, PLEASE FEEL FREE TO CONTACT ME, OTHERWISE I LOOK FORWARD TO RECEIVING YOUR FAMILY TRAVEL PACKET BY MAY 15, 2002. WE HAVE ONLY 60 ROOMS AND THEREFORE WILL ONLY BE ABLE TO ACCOMMODATE FAMILIES ON A FIRST-COME-FIRST-SERVE BASIS.

SINCERELY,

SHIRLEY RODRIGUEZ

PRESIDENT

PS.: IF ANYONE WOULD LIKE TO CONTRIBUTE TO THE RETREAT IN ANY WAY (i.e. WELCOME GIFTS; SNACKS FOR THE ROOMS, ETC.) PLEASE CALL ME TO DISCUSS.

Hilfe- Information

TEXAS WEATHER IN OCTOBER? WELL, WE HAVE A SAYING IN TEXAS: “iF YOU DON’T LIKE THE WEATHER, HANG AROUND, IT’LL CHANGE.” WE ARE HOPING FOR WEATHER IN THE RANGE OF 65-40. BRING A JACKET FOR THE MORNINGS AND NIGHTS. IT HAS BEEN KNOWN TO RAIN ALSO, SO IF YOU HAVE ROOM, PACK AN UMBRELLA.

THERE IS AN INDOOR POOL AT THE HOTEL. SO BRING YOUR SWIMSUIT.

BRING A GOOD PAIR OF WALKING SHOES FOR THE FAIR. THE STATE FAIR OF TEXAS OFFERS SOMETHING FOR EVERYONE. RIDES FOR THE YOUNG AND OLD. LOTS OF EXHIBITS, CRAFTS, DANCING, MUSIC, AND ANY KIND OF FOOD YOU WILL COULD WANT.

BRING A BOOK OR TABLET OF PAPER AND PEN TO WRITE DOWN ALL TE NEW NAMES AND ADRESSES OF PARENTS YOU WILL MEET.

SEE Y’ALL IN OCTOBER!

  Calendar of Events

Hotel

Hotelreservierungen werden von Share & Care vorgenommen. 

Bitte rufen Sie nicht selbst das Hotel an!

Embassy Suites Hotel Dallas Market Center

2727 Stemmons Freeway

Dallas, TX 75207

Tel.: 214-630-5332

Fax: 214-630-3446

Kontakt Information

Share and Care Cockayne Syndrome Network, Inc.

P.O. Box 570618

Dallas, Texas 75357

Hans-Peter Seibold (deutscher Ansprechpartner)

Büro:

Fax:

Geführenfreie Tel.Nr:

Handy:

E-Mail:

972-613-4590

972-613-4590

1-866-262-5296

214-728-2679

j93082@aol.com

Büro:

Fax:

E-Mail:

001-703 607 1631x125

001-703 607 1634

seiboldhp@navsea.navy.mil

fabiolaseibold@netzero.net